Tuesday, July 5, 2016
So my realization...THIS IS ME!
I'm a 39 year old mormon black female. I'm married with two kids and two dogs. I am a 19 year dance studio owner/teacher at Miss Chianti's Dane School Of Maryland. I've been married to husband James for 9 years and we have two sons a 2 year old (Kal, Kal) and a 3year old (T). We struggled with infertility for 5 years. After several IVF attempts and various infertility drugs my miracles were born (naturally...LOL! no really COL!! $80,000 in the hole!). Since 2014 I never could get those extra 60lbs off then... I had family/"friend" problems, business problems, marriage problems and just when I thought I was going to lose my dang mind, I was diagnosed with Brugada Syndrome a heart disorder and had an ICD implanted in March of 2016. After genetic testing.. It confirmed I have the SCN5A Gene - mutation change which is Brugada Syndrome, and I also
have the SCNNA3 Gene - variant uncertain significants seen in patients with
Arrhythmogenic right ventricular cardiomyopathy (ARVC), both cause sudden
cardiac death. In July of 2016 I decided I had enough!
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